TOURETTE’S SYNDROME: a NEW Clinical Study

What exactly is Tourette’s Syndrome?

Tourette’s (too-RETS) is a syndrome, or condition, specifically a type of tic disorder, affecting the brain and associated nerves that causes sufferers to make involuntary, repeated movements and sounds (motor, vocal/phonic, or both) or “tics” which are beyond their control. This disorder typically begins in childhood.

The severity can vary from mild to severe. That can also change over time; becoming better or worse.

This disorder is also widely misunderstood. Because of the influence of films, television, and now social media, those with the disorder are stereotypically seen as blurting out four-letter words in public. In addition, aside from its medical aspects, it obviously negatively affects the mental, emotional and social well-being of those afflicted. There is no cure as of yet, but there are treatments.

What causes Tourette’s Syndrome?

Fair question. No good answer. The exact cause of Tourette’s Syndrome isn’t known. It’s complex and probably caused by a combination of genetic (inherited) and environmental factors. Chemicals in the brain that transmit nerve impulses (neurotransmitters), including dopamine and serotonin, might play a role. But YOU can maybe help find those answers.

There’s Hope

Dr. Sarah Atkinson and her staff at Finger Lakes Clinical Research/ERG is conducting a clinical research trial for children with this disorder, aged 6 to 16, testing an investigational drug that can treat Tourette’s with fewer of the side effects of treatments now available. The study is done at Dr. Atkinson’s office in Brighton, NY – part of Rochester, NY. 

Clinical studies do not promise cures. Participants, like your child, become a vital partner in research, the key partner in fact. The study is closely monitored by the physician for safety, efficacy and side effects. There is no cost to participants and no insurance is required. Participants are paid a stipend for each visit to cover the cost of transportation and their time.

You can get additional information and any questions answered by calling Dr. Atkinson’s office at (585) 241-9670 during normal business hours. If your child or the child of a loved one suffers from this disorder, it is a phone call well worth making.

Find more useful information on Tourette’s.